What the caregivers in this study want you to know:

  • Treat me with kindness. Treat my child like you would any other child. Compliment them, talk to them, and ask them questions.

  • To healthcare workers: I know my child best. I do this every day, this is my entire life. But I get tired and I need help. Ask me what help I need.

  • We are caught between being a parent and being their nurse. But it is worth it every day.