Being his mom sometimes takes second place to his diagnoses.
Our “normal” is unique, but we wouldn’t have it any other way.
I live my life in a constant state of “ready to run.”
In my closet is a hospital bag packed with my clothes and some of his necessities.
Even when things look good, I know everything can change instantly.
Sometimes, he gets put in the most awkward positions to open up his lungs.
Although this looks counterintuitive, it can help him breathe better. It takes up to four people to do this in the hospital, but I do it myself at home.
Things don’t always go as planned, and he doesn’t always cooperate, but we make it work no matter what.
