Parent. Healthcare provider. Caregiver. Advocate.
From 2023 to 2024, a group of eight caregivers of children with tracheostomies in Texas partnered with a nurse scientist to answer the research question:
“What are the experiences of caregivers of CMC with a tracheostomy as they provide care daily for their child in the home?”
This study used photovoice, an innovative arts-based research methodology, to explore caregivers’ experiences. This site was created to share these families’ stories and to increase awareness of their daily challenges and successes.
Caregiver 1
Caregiver 2
Caregiver 3
Caregiver 4
Caregiver 7
Caregiver 5
Caregiver 6
Caregiver 8
About the researcher
Julie Van Orne is a registered nurse in Texas who has worked with children with a tracheostomy for over 16 years as a rehab technician, a bedside nurse, a private duty nurse, and now as a nurse scientist.
Contact
jvanorne@twu.edu