Parent. Healthcare provider. Caregiver. Advocate.

From 2023 to 2024, a group of eight caregivers of children with tracheostomies in Texas partnered with a nurse scientist to answer the research question:

“What are the experiences of caregivers of CMC with a tracheostomy as they provide care daily for their child in the home?”

This study used photovoice, an innovative arts-based research methodology, to explore caregivers’ experiences. This site was created to share these families’ stories and to increase awareness of their daily challenges and successes.